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Amy Byer Shainman - Advocate for those with BRCA and other Hereditary Cancer Syndromes

Thursday, March 3, 2016

MARCH 2016 - Hereditary Cancer News

Posted by The BRCA Responder at 8:44 AM
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Welcome to my blog!

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#staytuned #MyStory #BRCA #hereditarycancer #cancer #genetics #familyhistory #science #AngelinaJolie #geneticcounseling #genetictesting #mastectomy #previvor #geneticmutation #oophorectomy #maryclaireking #pinkandblue #brcasisterhood #gildaradner #BreastReconstruction #breastsurgery #plasticsurgery #decisionmaking #surgicalmenopause #memoir #bookbloggers #GenCSM #ComingSoon

A post shared by Amy Byer Shainman (@brcaresponder) on Apr 8, 2018 at 8:26pm PDT

QUARTERLY UPDATE - SPRING 2018

QUARTERLY UPDATE - SPRING 2018

May 1, 2018 - Hereditary Cancer Risk Symposium

May 1, 2018 - Hereditary Cancer Risk Symposium
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LIST OF RESOURCES!

  • @BRCAresponder's BRCA & Hereditary Cancer BOOK & MOVIE List
  • BRCA Support & Communication BASSER RESEARCH CENTER FOR BRCA
  • Find NCI - Supported Clinical Trials
  • Hereditary Cancer News - Back issues
  • Patient Resources UCSF CENTER FOR BRCA RESEARCH

NEW RESOURCE! POSITIVE PERSPECTIVES SERIES PODCAST

RESOURCE: My Gene Counsel

RESOURCE: My Gene Counsel

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Breast Cancer Blogs | Listly List https://t.co/t2vTaMFbY9 via @JBBC
#BreastCancerAwarenessMonth

— Listly (@listly) October 2, 2017

MEN & HEREDITARY CANCER

MEN & HEREDITARY CANCER

Watch Pink & Blue: Colors of Hereditary Cancer on iTunes!

Watch Pink & Blue: Colors of Hereditary Cancer on iTunes!

Favorite Blogs

  • JOURNEYING BEYOND BREAST CANCER
  • NANCY'S POINT

BOOK REVIEW

The Bright HourThe Bright Hour by Nina Riggs
My rating: 3 of 5 stars

Rather quick read. Liked it but did not love it.
Well written. Only 1 page and 1/2 discusses family history and BRCA. As an advocate of course I was wanting more facts and educational information included about breast cancer, family history, and cancer risk.
Enjoyed Nina's relationship with Ginny. Very funny stuff...those were my favorite parts.



View all my reviews

BOOK REVIEW

A Cancer in the Family: Take Control of Your Genetic InheritanceA Cancer in the Family: Take Control of Your Genetic Inheritance by Theodora Ross
My rating: 4 of 5 stars

As a BRCA/Hereditary Cancer Advocate I was excited to read Dr. Ross' book. While I thoroughly enjoyed it, part handbook, part memoir, it's definitely worth the purchase just for the index! Pages 201-266 list inherited cancer syndromes by name and associated gene. Lifetime cancer risks associated with each syndrome are also spelled out in addition to current risk management guidelines for both women and men.

Those interested in health and science would enjoy this book.
Medical students and ALL DOCTORS in ALL SPECIALTIES would benefit from reading this book.
@BRCAresponder




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MEDICAL DISCLAIMER

Information and resources on brcaresponder.blogspot.com should not be used as a substitute for professional medical care. it is always important to do your own research and work with your own medical professionals regarding your own personal health issues & concerns.

BOOK REVIEW

Dangerous Boobies: Breaking Up with My Time-Bomb BreastsDangerous Boobies: Breaking Up with My Time-Bomb Breasts by Caitlin Brodnick
My rating: 4 of 5 stars

I've never met comedian and author Caitlin Brodnick but I have heard her voice on her Screw You Cancer series: https://video.glamour.com/series/scre... Full disclosure: I also interviewed Caitlin via twitter for a blog post on this book: http://thebrcaresponder.blogspot.com/...

My favorite thing about "Dangerous Boobies" is its authentic voice; as I read it was as if Caitlin was reading it to me, in her sweet chirpy voice she writes like she talks raw, honest, fast, confident, sometimes insecure, often anxious, heartily reflective and mostly, "udderly" hysterical. Yup, that was me attempting channel my inner Caitlin.

As an advocate for those with BRCA and other hereditary cancer syndromes, I was excited to read Brodnick's book. I absolutely applaud anyone who is willing to be so open with their experience and Brodnick not only did this with her Screw You Cancer Series but with her book too. All was seemingly rosy as she was recovering in the last of her Screw You Cancer episodes, answering viewer questions. However, we learn in the book that all was not easy. Caitlin sheds light on tougher times post surgery, including struggling with serious depression.

I appreciate the places in the book where Brodnick gets statistics and information straight from the experts. Regarding genetic testing, I am thankful she says to see a genetic counselor and find out the facts. (I'm adding here that you can find a certified genetic counselor by phone or in person at: http://nsgc.org)

If you want to get a quick taste of Caitlin's humor and tone, just take a look at her chapter titles. My favorite one..."CANCER IS AN EMOTIONLESS BITCH WHO WILL RUIN YOUR BRUNCH PLANS"! Another chapter, TITTY TITTY BANG BANG: THE SEX PART, where she discusses having sex with her husband for the first time after surgery. The first sentence of that chapter is "Author's note: Dad and Grandpa, please skip to page 145." So perfect.

And, I cannot end this review without mentioning some stunning similarities I learned Caitlin and I have:

1. We both have the BRCA 1 5385insC mutation
2. We both have neurocardiogenic syncope
3. We both lost a close female relative at 33 years old
4. We both have Jewish fathers named Al
5. We both have moms that are hot shiksas
6. We both love writing, I'm writing my book now
7. We both have fair skin and reddish hair
8. We both have one leg shorter than the other

Very happy I ready this.
Very funny. Very real.
Very happy this is a resource I can recommend to others!
XO Amy @BRCAresponder

View all my reviews

BOOK REVIEW

Calling the Shots in Your Medical CareCalling the Shots in Your Medical Care by Beth Gainer
My rating: 5 of 5 stars

Excellent book by Beth Gainer. Using her own experiences as a guide, Beth illustrates exactly how to advocate for yourself with your medical care.
Clear examples and suggestions are given. A great handbook of empowerment for any patient.

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GOT RISK? Where should you go? The best 1st step is to contact a certified genetic counselor.

GOT RISK?  Where should you go? The best 1st step is to contact a certified genetic counselor.

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About BRCA/Dr. Susan Domchek

LOOKING AT OLD PHOTOS OF MY PATERNAL GRANDPARENTS Lillian & Bo

LOOKING AT OLD PHOTOS OF MY PATERNAL GRANDPARENTS Lillian & Bo
Lillian died in 1934 from breast cancer-she was 33 years old. Bo died in the 60's before I was born.

LILLIAN & BO

LILLIAN & BO

LILLIAN & MY DAD circa 1930

LILLIAN & MY DAD circa 1930

ME & MY BEAUTIFUL SISTER JAN

ME & MY BEAUTIFUL SISTER JAN
I am a previvor, Jan is an ovarian, uterine, & breast cancer survivor

Kristin & Me

Kristin & Me
Kristin was BRCA1 positive & passed away of triple negative breast cancer in 2010. She was 42 years old.

Google+ Followers

BRCA SISTERHOOD

BRCA SISTERHOOD
I co-administer the largest private BRCA facebook support group for women.

My pal Scary Face Dog

My pal Scary Face Dog
Pink & Blue Mascot

MY BRCA TEST RESULT

MY BRCA TEST RESULT
positive for BRCA1 #5385

PINK MOON LOVELIES

PINK MOON LOVELIES
Previvor & Survivor Stories

PRETTY IS WHAT CHANGES

PRETTY IS WHAT CHANGES
An amazing book…the first one I ever read dealing with BRCA/Hereditary Cancer

LETTERS TO DOCTORS

LETTERS TO DOCTORS
BRCA BOOK FOR DOCTORS & PATIENTS

FAVORITE PIC OF ME & MY DAD circa 1972

FAVORITE PIC OF ME & MY DAD circa 1972
I inherited my BRCA1 gene mutation from him.

@BRCAresponder

@BRCAresponder

Thank you for reading my blog!

Thank you for reading my blog!
@BRCAresponder
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