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Amy Byer Shainman - Advocate for those with BRCA and other Hereditary Cancer Syndromes

Thursday, March 3, 2016

MARCH 2016 - Hereditary Cancer News

Posted by The BRCA Responder at 8:44 AM
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RESOURCES: FAMILY COMMUNICATION

  • BRCA Support & Communication BASSER RESEARCH CENTER FOR BRCA
  • Patient Resources UCSF CENTER FOR BRCA RESEARCH

RESOURCE: BRCA/Hereditary Cancer BOOKS/MOVIES

RESOURCE: BRCA/Hereditary Cancer BOOKS/MOVIES
LIST

RESOURCE: My Gene Counsel

RESOURCE: My Gene Counsel

RESOURCE: I Have Lynch Syndrome

RESOURCE: I Have Lynch Syndrome

RESOURCE: Dictionary of Cancer Terms from the National Cancer Institute

MEN & HEREDITARY CANCER

MEN & HEREDITARY CANCER

Watch Pink & Blue: Colors of Hereditary Cancer on iTunes!

Watch Pink & Blue: Colors of Hereditary Cancer on iTunes!

BOOK REVIEW

The Bright HourThe Bright Hour by Nina Riggs
My rating: 3 of 5 stars

Rather quick read. Liked it but did not love it.
Well written. Only 1 page and 1/2 discusses family history and BRCA. As an advocate of course I was wanting more facts and educational information included about breast cancer, family history, and cancer risk.
Enjoyed Nina's relationship with Ginny. Very funny stuff...those were my favorite parts.



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BOOK REVIEW

A Cancer in the Family: Take Control of Your Genetic InheritanceA Cancer in the Family: Take Control of Your Genetic Inheritance by Theodora Ross
My rating: 4 of 5 stars

As a BRCA/Hereditary Cancer Advocate I was excited to read Dr. Ross' book. While I thoroughly enjoyed it, part handbook, part memoir, it's definitely worth the purchase just for the index! Pages 201-266 list inherited cancer syndromes by name and associated gene. Lifetime cancer risks associated with each syndrome are also spelled out in addition to current risk management guidelines for both women and men.

Those interested in health and science would enjoy this book.
Medical students and ALL DOCTORS in ALL SPECIALTIES would benefit from reading this book.
@BRCAresponder




View all my reviews

BOOK REVIEW

Calling the Shots in Your Medical CareCalling the Shots in Your Medical Care by Beth Gainer
My rating: 5 of 5 stars

Excellent book by Beth Gainer. Using her own experiences as a guide, Beth illustrates exactly how to advocate for yourself with your medical care.
Clear examples and suggestions are given. A great handbook of empowerment for any patient.

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T shirt - COFFEE & BOOKS & DOGS & NAPS.
T shirt - COFFEE & BOOKS & DOGS & NAPS.
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Information and resources on brcaresponder.blogspot.com should not be used as a substitute for professional medical care. it is always important to do your own research and work with your own medical professionals regarding your own personal health issues & concerns.

GOT RISK? Where should you go? The best 1st step is to contact a certified genetic counselor.

GOT RISK? Where should you go? The best 1st step is to contact a certified genetic counselor.

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About BRCA/Dr. Susan Domchek

LOOKING AT OLD PHOTOS OF MY PATERNAL GRANDPARENTS Lillian & Bo

LOOKING AT OLD PHOTOS OF MY PATERNAL GRANDPARENTS Lillian & Bo
Lillian died in 1934 from breast cancer-she was 33 years old. Bo died in the 60's before I was born.

LILLIAN & BO

LILLIAN & BO

LILLIAN & MY DAD circa 1930

LILLIAN & MY DAD circa 1930

ME & MY BEAUTIFUL SISTER JAN

ME & MY BEAUTIFUL SISTER JAN
I am a previvor, Jan is an ovarian, uterine, & breast cancer survivor

Kristin & Me

Kristin & Me
Kristin was BRCA1 positive & passed away of triple negative breast cancer in 2010. She was 42 years old.

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BRCA SISTERHOOD

BRCA SISTERHOOD
I co-administer the largest private BRCA facebook support group for women.

My pal Scary Face Dog

My pal Scary Face Dog
Pink & Blue Mascot

MY BRCA TEST RESULT

MY BRCA TEST RESULT
positive for BRCA1 #5385

PINK MOON LOVELIES

PINK MOON LOVELIES
Previvor & Survivor Stories

PRETTY IS WHAT CHANGES

PRETTY IS WHAT CHANGES
An amazing book…the first one I ever read dealing with BRCA/Hereditary Cancer

LETTERS TO DOCTORS

LETTERS TO DOCTORS
BRCA BOOK FOR DOCTORS & PATIENTS

FAVORITE PIC OF ME & MY DAD circa 1972

FAVORITE PIC OF ME & MY DAD circa 1972
I inherited my BRCA1 gene mutation from him.

@BRCAresponder

@BRCAresponder

Thank you for reading my blog!

Thank you for reading my blog!
@BRCAresponder
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